Leah B.
Humble Servant of All
I got back my PET scan results. My 6.4-mm irregular left upper lobe nodule came back positive. Now they want to do a biopsy. This being said, here's my issue: The PET scan was performed by VA. Prior to the PET scan, my outside-VA pulmonologist, who I gave a copy of the actual PET scan to, told me this nodule was already present for a few years. On top of that, in the 66 days between the discovery of the nodule on a CT scan and the actual PET scan, this nodule remains at 6.4 mm. It hasn't grown a bit. Another relevant fact: PET scans on nodules below 8 mm are often false positive. Okay. Yet another fact: My entire throat also lit up on the PET scan because I have severe GERD and LPR. My throat and upper airway are inflamed. And another: I took a pepsin saliva test at home and two out of three tubes were positive for pepsin. Most importantly, the morning sample was positive, which proves I am microaspirating stomach acid and pepsin into my lungs and throat. I have more than just this one lung nodule. Guaranteed they were all caused by GERD. Stomach acid is damaging my lungs when I already have COPD. More germane here, I believe that's why this 6.4-mm nodule is lighting up. It's very likely not cancer. It's inflammation. My point? I don't want to take a chance on getting a collapsed lung from a biopsy. I want my outside-VA pulmonologist to take over and just monitor this thing with CAT scans every three months. If it's not growing, it very likely is not cancer. Please in Jesus's name, help me make my case to my outside-VA pulmonologist. He called early this morning. I just missed him. I returned his call, but he never called back. I'm pretty sure he will call early tomorrow too. Please in Jesus's name give me strength. You know what another finding on that PET scan was? Cholelithiasis. That's a direct side-effect from the omeprazole I take for my GERD. As you may recall, I am trying hard to get the TIF surgery with hernia removal to resolve my GERD/LPR. It's affecting my breathing, making me so sick at times. I ate bread on Christmas. I didn't make it to Mother's Day because I was too sick. I basically have given up cooking and curtailed even what little social life I have because anything involving food is like navigating a loaded minefield. And now this -- That omeprazole that barely even works anymore has given me gallstones. The TIF surgery could make me not need to use antacids and proton pump inhibitors. To conclude: In Jesus's name, pray I do well on the phone with my pulmonologist and that he will see the logic in what I'm saying. I honestly believe the risk of harm from the biopsy is higher than the risk this thing is cancerous. I'm actually sorry I ever agreed to a cancer screening to begin with. VA had called me and written me letters to have that CT scan for about three weeks before I agreed to it. I haven't smoked in almost 19 years, and my outside-VA pulmonologist, who is an excellent doctor, stopped ordering CT cancer screening scans on my lungs about five years ago. Again, I am terrified of lung damage from an unnecessary biopsy. Also in Jesus's name please pray this nodule never grows. Finally, please pray my pulmonologist will support me in getting TIF surgery and that my gallstones never become symptomatic. Thank you for praying.

