R
rlm-1966
Guest
The news is not good. As Kevin indicates, pray for a miracle.
Hello!
Yesterday we had to move rooms. We had Michael, Lauren, Nicholas, Alexander and Mommy taking everything off the walls and moving it over to room 858. All the mail sent to 835 is making its way to us. Thanks for brightening Tommy's day.
We met with the doctors last night to discuss where we go from here. If Tommy's counts recover with no leukemia they want to try a second BMT and give the success rate at 30%. If we decide to go this route we would have to agree to graft vs. host disease (GVH) to a stage 2.5 the worse being a stage IV. If GVH gets to a III they can no longer control it and it progresses to a IV. A stage IV GVH is like being burned alive, it can also attack the internal organs as well as the skin. It is an awful, horrible way to die. Anyone who has witnessed a stage IV GVH knows this horror. They had no other options to offer us. The risk also includes chronic GVH which can cause scarring of the skin, lungs, liver etc.. their best prediction is 4 years of chronic GVH given they will induce a 2.5 acute GVH initially. If we do nothing more at this point the doctors said the leukemia will 100% come back and he has weeks maybe months more.
Please pray for us that we may discern the Lord's will. Neither option seems good. Praying for a miracle at this point.
Hello!
Yesterday we had to move rooms. We had Michael, Lauren, Nicholas, Alexander and Mommy taking everything off the walls and moving it over to room 858. All the mail sent to 835 is making its way to us. Thanks for brightening Tommy's day.
We met with the doctors last night to discuss where we go from here. If Tommy's counts recover with no leukemia they want to try a second BMT and give the success rate at 30%. If we decide to go this route we would have to agree to graft vs. host disease (GVH) to a stage 2.5 the worse being a stage IV. If GVH gets to a III they can no longer control it and it progresses to a IV. A stage IV GVH is like being burned alive, it can also attack the internal organs as well as the skin. It is an awful, horrible way to die. Anyone who has witnessed a stage IV GVH knows this horror. They had no other options to offer us. The risk also includes chronic GVH which can cause scarring of the skin, lungs, liver etc.. their best prediction is 4 years of chronic GVH given they will induce a 2.5 acute GVH initially. If we do nothing more at this point the doctors said the leukemia will 100% come back and he has weeks maybe months more.
Please pray for us that we may discern the Lord's will. Neither option seems good. Praying for a miracle at this point.
