We hear the deep longing in your heart for healing, independence, and a life free from the burdens of NF2. Your pain is real, and we grieve with you over the hardships you’ve endured—from the shock of diagnosis as a young teenager to the daily struggles that have stolen so much of what others take for granted. You are not unseen by God, and your cry for help has reached His throne. The fact that you are turning to Him now, even after doubt, is a testament to His drawing you near. He is not distant or indifferent; He is the God who hears the brokenhearted and binds up their wounds (Psalm 147:3). You do not need to earn His attention or prove your faith—He already knows your suffering, and He invites you to cast every care upon Him (1 Peter 5:7).
Yet we must gently but urgently address something critical: you mentioned praying to "God," but you did not invoke the name of Jesus Christ. This is not a small detail. The Bible is clear that there is *no other name under heaven given among men by which we must be saved* (Acts 4:12), and it is *only through Jesus* that we have access to the Father (John 14:6). If you have not yet surrendered your life to Christ—acknowledging Him as Lord and Savior—then your prayers, while heard by God, lack the power of the Mediator who bridges the gap between us and the Father. Jesus Himself said, *"I am the way, the truth, and the life. No one comes to the Father, except through me"* (John 14:6, WEB). Without faith in Him, we remain separated from God by sin, no matter how sincere our pleas. But the good news is that Jesus is ready to receive you *right now*. Confess with your mouth that He is Lord, believe in your heart that God raised Him from the dead, and you *will* be saved (Romans 10:9). There is no formula—just a turning of your heart to Him in trust. Will you do that today? He is waiting.
As for your desire for healing, we join you in pleading for a miracle. The Bible shows us that God *does* heal—sometimes instantly, sometimes gradually, and sometimes in ways we don’t expect until eternity. We see Jesus healing the blind, the lame, and those with lifelong afflictions (Matthew 15:30-31), and we know He is the same yesterday, today, and forever (Hebrews 13:8). Yet we also acknowledge that His ways are higher than ours (Isaiah 55:9), and His timing is perfect. He may choose to heal you supernaturally, or He may use the very gene therapy you’re hoping for—or He may sustain you in this trial while preparing you for a greater purpose you cannot yet see. But this we know: *He will never waste your pain*. Your suffering is not meaningless. In your weakness, His strength is made perfect (2 Corinthians 12:9), and He can use your story to draw others to Himself. Even now, your longing for normalcy is a God-given desire—He created you for *abundant* life (John 10:10), not just survival. Trust that He sees the days ahead when you cannot.
We also want to speak truth into the lies that may be whispering to you in the dark: *"I’m useless. I’ll never be independent. My life doesn’t matter."* These are *not* from God. You were fearfully and wonderfully made (Psalm 139:14), and your worth is not tied to productivity, a driver’s license, or a job. Even if your body fails, your spirit is eternal, and God has a plan for you *right now*—not just "someday." Perhaps this season is preparing you to comfort others with the comfort you’ve received (2 Corinthians 1:4). Perhaps He is teaching you to depend on Him in ways you never would have otherwise. Or perhaps He is simply asking you to *rest* in His love, like a child held by a father who sings over them (Zephaniah 3:17).
Practically, we encourage you to immerse yourself in Scripture, which is *living and active* (Hebrews 4:12). Start with the Gospels—see how Jesus treated the sick, the outcasts, the desperate. He was *moved with compassion* (Matthew 14:14). That same compassion is for you. Also, seek out a Bible-believing church or support group where you can be prayed over *in Jesus’ name* by others who will stand with you in faith. Isolation will only magnify despair, but community can carry you when you’re weak.
Lastly, we must address the hope you’ve placed in gene therapy. While medical advancements are a gift from God (who gives wisdom to scientists, James 1:17), we caution you against letting it become an idol—a false savior. If a cure comes through science, praise God for it! But if it doesn’t, will you still trust Him? True peace is not found in a cure but in *Christ Himself*, who promises, *"I will never leave you nor forsake you"* (Hebrews 13:5). He may not remove the thorn, but He will give you grace to endure it (2 Corinthians 12:7-10).
Now, let us pray over you:
*"Heavenly Father, we lift up this precious soul to You, the Great Physician and the God of all comfort. Lord, we ask that You would meet them in this place of deep longing and despair. Draw them to Yourself through Jesus Christ, Your Son—open their eyes to see Him as Savior, Lord, and Healer. If they have not yet surrendered to Him, soften their heart now. Let today be the day they cry out to Jesus and are saved, for there is no other name by which we can approach Your throne.
Father, we boldly ask for a miracle. You knit this person together in their mother’s womb, and You know every cell, every tumor, every limitation they face. We pray for supernatural healing—whether through a divine touch, a medical breakthrough, or a combination only You can orchestrate. Restore what has been stolen. Renew their strength like the eagle’s (Isaiah 40:31). Give them wisdom for each day, and provide for their needs—whether through unexpected helpers, creative solutions, or Your direct intervention.
Lord, we rebuke the lies of the enemy that say they are forgotten or without purpose. Fill them with Your truth: that they are *loved*, *seen*, and *chosen*. Remind them that even if their body is weak, their spirit is alive in Christ, and their future is secure in Your hands. Give them patience to wait on You, and joy in the small mercies along the way.
For those who will walk alongside them—doctors, family, friends, or believers—give them compassion and wisdom. Raise up a community to support and pray for them. And if they feel alone, Lord, let them *feel* Your presence in a tangible way. You are their Shepherd, and they shall not want (Psalm 23:1).
Finally, Father, prepare them for whatever lies ahead—whether healing here or healing in eternity. May their hope be fixed on You alone, not on outcomes. And if they are angry, let them bring that to You honestly, knowing You can handle their raw emotions (Psalm 13:1-2). Turn their mourning into dancing (Psalm 30:11), and let their story testify to Your goodness, even in the hard places.
We ask all this in the mighty, matchless name of Jesus Christ, our Lord and Redeemer. Amen."*
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We will continue to pray for you, and we urge you to reach out to us again. You are not alone in this. If you’d like help finding biblical resources, a church, or further prayer support, let us know. And if you’re ready to surrender your life to Jesus, we would be honored to walk with you in that step. He is waiting with open arms. *"Come to me, all you who labor and are heavily burdened, and I will give you rest"* (Matthew 11:28, WEB). That includes you.
Prayer Focus: God, Thank You for loving me. God, I ask You in Jesus’ name please bless me with everything that I stand in need of and everything You want me to have. 
