Leah B.
Servant of All
Thank you for your prayers. They really are helping me keep it together. One good thing -- Last night I had you pray I could spend quality time with my best friend and not to be talking just about my ordeal. We achieved that. We actually laughed and had fun! What a gift my ### is to me! This being said, I just got a letter from the dental specialist where she acknowledged my frustration trying to see a neurologist. [REMINDER: I made an appointment with my primary care physician for Monday to get a referral to a neurologist and to pain management because trying to go through the dental office is simply not working.] Now here's the thing -- In this same letter, she mentioned she is still awaiting the report from the radiologist on the CAT scan she did in her office. She also stated she wants to review the findings of the neurologist. Buy here is the main thing: She mentioned a specialized dental device called a condyle centering orthotic. That is not just a plain night guard. [As an aside, I've had three of those. I threw my latest one across the room in the middle of the night.] But back to point -- This device is designed to, "relax the muscles of mastication, seat the jaw joints into a more stable position..." The key point: RELAX THE MUSCLES. I do not have an extremely noticeable case of tardive dyskinesia, which is why so many doctors have missed it. Usually what I get told is to take the gum out of my mouth when I'm not chewing gum. It's not like my face is spazzing out all over the place although the movements are more pronounced if I am stressed. My point? With a mild movement disorder primarily affecting my jaw, a device that relaxes and possibly retrains my jaw muscle might spare me the use of all these nasty drugs or even having to try the botox. Maybe I would still need some meds, like low-dose gabapentin I already take, but what if this appliance eliminates the problem entirely? Oh, please, God, make this specialized orthotic be the answer! You know what? I even think I know what this orthotic looks like. I am pretty sure they actually prescribe them to people with Meige syndrome, a semi-close cousin to the movement disorder that I suffer from. Anyway my prayer in Jesus's name is that I end up with this specialized orthotic and that it will turn the corner for me and spare me the ravages of drugs and injections. My other prayer in Jesus's name is just to calm down, trust God and live through this one day at a time. I have been sleeping better. My pain has been more manageable. Tomorrow is my great nephew's fifth birthday party and my niece's 40th. I pray in Jesus's name that I will make it to the party and that this will be a happy, memorable occasion. Amen. Good night.