R
rainydaymatt
Guest
Hello,
My name is Matt, and I'm twenty-six years old. Since I was a baby, I've been confined to a wheelchair as a result of an uncommon neural tube defect. I maintain pretty good upper body control, and have received an implant to help control the spasticity as a result of my disease. I've always considered myself very blessed - I live with relatively minimal restrictions on my life compared to many people I've encountered through doctors, special needs groups in school setting, etc; I can even walk for short distances with the help of crutches or a walker. In short, and without congratulating myself, I feel I've always kept a good attitude about my setbacks. In fact, this is one of the happiest times in my life - I'm very hopeful about finding love and a family, seeing God's beautiful Creation, and trying to make a difference for Him.
However, I've been noticing a number of symptoms in recent months whose cause I don't know; the set of issues aren't exactly uncommon, but the combination of the things I've noticed has me filled with fear that I've developed another neuromuscular condition in addition to the one I already have - I won't mention it specifically, but one which would slowly rob me of the mobility I do have, and take my life over the course of a few years in a way that frightens me greatly - so greatly its been difficult for me to focus in recent months and weeks. I know there are other explanations, but my blood runs old whenever the symptoms occur in suspicious ways.
I have been praying a lot in recent weeks, praying that God spare me the disease and crying about how there's little I wouldn't prefer to deal with than that which I fear now.
I ask, please, that you pray for me - that my body isn't suffering from the things I fear, and that my mind will be at peace. And, although it's hard to even mention, that I have the strength to deal with whatever comes to me, good or bad.
Thank you beyond words,
Matt
My name is Matt, and I'm twenty-six years old. Since I was a baby, I've been confined to a wheelchair as a result of an uncommon neural tube defect. I maintain pretty good upper body control, and have received an implant to help control the spasticity as a result of my disease. I've always considered myself very blessed - I live with relatively minimal restrictions on my life compared to many people I've encountered through doctors, special needs groups in school setting, etc; I can even walk for short distances with the help of crutches or a walker. In short, and without congratulating myself, I feel I've always kept a good attitude about my setbacks. In fact, this is one of the happiest times in my life - I'm very hopeful about finding love and a family, seeing God's beautiful Creation, and trying to make a difference for Him.
However, I've been noticing a number of symptoms in recent months whose cause I don't know; the set of issues aren't exactly uncommon, but the combination of the things I've noticed has me filled with fear that I've developed another neuromuscular condition in addition to the one I already have - I won't mention it specifically, but one which would slowly rob me of the mobility I do have, and take my life over the course of a few years in a way that frightens me greatly - so greatly its been difficult for me to focus in recent months and weeks. I know there are other explanations, but my blood runs old whenever the symptoms occur in suspicious ways.
I have been praying a lot in recent weeks, praying that God spare me the disease and crying about how there's little I wouldn't prefer to deal with than that which I fear now.
I ask, please, that you pray for me - that my body isn't suffering from the things I fear, and that my mind will be at peace. And, although it's hard to even mention, that I have the strength to deal with whatever comes to me, good or bad.
Thank you beyond words,
Matt
